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FIB - Scams 101 - Ye Olde Archives

Some resources and some comments

Posted By: Mel. White
Thursday, 20 July 2006, at 8:22 a.m.

In Response To: Will do some research and get back to you in a few hours (Mel. White)

Active, but with a very "girly" theme on the intro pages. Don't let that put you off.
http://groups.msn.com/ChronicPainSupportGroupCPSG/

Clinical trials on chronic pain (eyeball them to see which hospitals and universities are doing these studies. You can't get IN them, but if someone's close, you can ask for a recommendation list of doctors)
http://www.clinicaltrials.gov/search/term=Chronic+Pain

American Pain Foundation. Not great for support but some good links (journals, pain in the news)
http://www.painfoundation.org/

American Chronic Pain Association
http://www.theacpa.org/

Mayo Clinic's list of support:
http://www.cnn.com/HEALTH/library/PN/00057.html

Here's another one:
http://www.beliefnet.com/boards/discussion_list.asp?boardID=51182

There's a couple of other things I'm looking for, speaking as a family member of someone in chronic pain. One of the hardest things to do is to educate your own family about your pain without making it seem like you're a malingerer or a whiner. Sadly, those of us who aren't in constant emotional or physical pain can get "fatigue" about your symptoms and become a bit oblivious. Teaching your family about what to look for if your meds go whacky or things are getting out of control for you is VERY helpful (and you must allow them to help.) It gives everyone control over the situation-- even the kids, who really do have a caretaking streak in them. If they can't help, they feel helpless and frustrated and burnout very quickly. You can get anger and resentment building up, and this whole dynamic will harm everyone.

So... I'd recommend teaming up with the family.

I'm not sure what other resources you have, so I won't lengthen the message with a bazillion more links. Read through the sites, ask questions... if I can help in any way (I'm not a doc or any kind of medical expert), feel free to email me: cyberwizard at spamcop dot net.

Messages in This Thread

Have you read MAAMAW'S CLICKY NOTES today?
Excuse me... You MISSED them??
At the top o' the page in the blue bars (sheesh!).

RSD/ CRPS illness-support needed (views: 661)
robert hinton -- Wednesday, 19 July 2006, at 7:57 p.m.
- Will do some research and get back to you in a few hours (views: 620)
  Mel. White -- Wednesday, 19 July 2006, at 8:23 p.m.
  - Hi Mel (views: 640)
    Carla Ball -- Thursday, 20 July 2006, at 7:37 a.m.
  - Some resources and some comments (views: 638)
    Mel. White -- Thursday, 20 July 2006, at 8:22 a.m.
- Re: RSD/ CRPS illness-support needed (views: 690)
  Carla Ball -- Thursday, 20 July 2006, at 7:26 a.m.

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